Figi, 13, was the namesake for Charlotte’s Web products. Her story changed the way the public sees marijuana.
harlotte Figi, the Colorado Springs girl who, as a gleeful and fragile child, launched a movement that led to sweeping changes in marijuana laws across the globe, has died from complications related to the new coronavirus.
She was 13.
Charlotte’s death was announced by a family friend Tuesday night on the Facebook page of her mother, Paige Figi.
“Charlotte is no longer suffering. She is seizure-free forever. Thank you so much for all of your love,” read the post, which also asked the public to respect Figi’s family’s privacy.
In recent weeks, Paige Figi posted on Facebook about a serious illness that struck all the members of her family and sent Charlotte to the hospital. She never explicitly said it was COVID-19, the disease caused by the coronavirus, and in one reply to a post mentioned that the family had been unable to get tested for the disease. The Realm of Caring Foundation, an organization co-founded by Paige Figi, confirmed on Facebook early Wednesday that Charlotte’s death was due to complications from COVID-19.
If verified by public health officials, that would make Charlotte the youngest victim of the pandemic in Colorado so far.
“Your work is done Charlotte, the world is changed, and you can now rest knowing that you leave the world a better place,” the Realm of Caring Foundation wrote on Instagram.
Charlotte had Dravet syndrome, a rare and debilitating form of epilepsy that first appears when children are young. From the time she was just 3 months old, Charlotte suffered hundreds of small and large seizures a day. Pharmaceutical treatments proved ineffective, and, by the age of 5, Charlotte struggled to walk and talk and required a feeding tube.
After hearing about a family in California that treated their child’s seizures with oil made from cannabis, Paige Figi began to research the possibility and soon connected with a Colorado Springs medical marijuana dispensary owner named Joel Stanley, who, along with his brothers, had helped developed a strain of cannabis rich in cannabidiol, or CBD, a non-psychoactive compound.